Each year my husband takes our sons and my brothers on a ‘guys only’ ski trip, and that was fast approaching. We asked Mike’s doctor if he could go to hang out with the guys, and the doctor said he had to be careful even playing cards, not to use that shoulder at all. I was nervous for Mike to leave but looking forward to the break. He was weaning himself off of the pain medication, and starting to do more for himself. I knew he would never expect the guys to do for him what he expected from me. I guess the lack of sleep for three weeks took its toll on me, and I became sick. My husband offered to stay behind, but I shooed him and my two sons out the door. By now I was running a temperature averaging 102, and just wanted to stay in bed. Unfortunately, this weekend Clara’s daughter was also away. Whether or not I wanted to take care of Clara, it still had to be done. I would set my alarm to wake me up when it was time to care for Clara, go back to bed and set my alarm for the next time. Each time the alarm would go off I would feel sorry for myself that I had the burden of taking care of Clara. I was angry that every one else could go off when they wanted, but I was always left holding the bag of responsibility, and it wasn’t even my mother. In my mind that weekend, I was practically a martyr. Each time I went over to Clara’s it was with an attitude. When my husband would call home to check on me, I was sure to tell him just how rotten I felt. He felt bad that I was sick and still had to still take care of his mother. Good, that’s how I wanted him to feel. Yes, being sick made me really ugly! My mother would call to try to help, and being the martyr I would not allow it. It would make me so mad that my family was the one always offering to help me care for Clara, and not Clara’s family. I thought of all the times I had to take Clara to Johns Hopkins Hospital to see one specialist or another. They were such long days. Just getting her there was eventful. I would pull up to the entrance, help Clara out of the car, find a place to leave her propped up, run back to my car, go to the parking lot, then hurry back to where I left Clara, hoping she was still vertical. Then we would enter Johns Hopkins and hope Clara could make the long walk to the area she needed to be seen. Eventually I discovered the valet service at the hospital and took advantage of that. It made it so much easier pulling up to the curb, getting Clara out and not having to worry about the car. By now we had a wheelchair for Clara which helped quite a bit. I thought of all the surgical procedures she had done that mostly fell on me. Sometimes Andy would leave work and check in for a bit, but then leave to go back to work. Clara’s daughter would come and do the same. One time after a surgical procedure they both came and left. In recovery Clara ran into complications, and there was talk of admitting her overnight. I was left there alone to deal with this crisis, and Clara was quite distraught. It ended up that Clara stabilized enough to be discharged and by now it was the height of rush hour traffic and it was snowing hard. Clara was given pain medicine to hold her over until she got home. They could not give her too much, or she would have been unable to walk once we got home. Now we were stuck in terrible traffic, moving only three city blocks in twenty-five minutes and I’m panicking that Clara’s medicine was going to run out and she would be suffering and there was nothing I could do about it. The responsibility I would feel for Clara would become overwhelming, but it had to be done. By the time we got home, there were several inches of snow on the ground, Clara was quite weak and in pain. Although Andy is quite particular about the care of our yard, when I got home I drove the car across the front yard to Clara’s door. Mike and Zack came out and helped their Grandmom inside. Even my grown sons had a struggle to get her inside and I thought, ‘What if they were not home, what would I have done?’ I prayed that I could get the car back to the driveway without getting stuck. Inside I thought I dared for Andy to say something to me about driving over his lawn. To me desperate times, desperate measures! It was snowing so hard, that in no time my tire tracts were filling in. That feeling of being in this with Clara all alone, despite the fact that she had her own children was a source of sadness and frustration for me. Of course, those feelings were exaggerated in that I did not have to do one hundred percent of everything myself without ever receiving help, but often I was left holding the bag of care for Clara. It just seemed to be expected, and seldom appreciated. That would create emotional turmoil for me, fighting feelings of resentment towards her own children. The ski weekend brought those feelings to the surface again. As I laid in bed feeling horrible, those were some of the memories that came flooding back. Although Clara would express concern for me, she still wanted her hot tea on schedule, to go to bed when she wanted, etc. The weekend came to an end, the guys returned, I was feeling a bit better, and Mike no longer required extra assistance from me.
I was Clara’s full time caregiver for 8 years. I mentioned earlier in this blog that I am posting exerpts from my book, Life with Clara – One Caregiver’s Journey. My goal has always been that my experience and honesty could help others in this life changing role. My entire account is available at www.createspace.com/3469034
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